Emily Johnson
THIS VALUABLE INVESTMENT CHANGED ME
Do you ever wonder what it would be like to make a big investment in yourself? Like really BIG? Have you ever dreamed about being part of...
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Emily Johnson
- Feb 25, 2022
- 7 min
Story: Moving From Pain to Purpose
It was Friday January 10, 2020, when our 9-year-old son, Miles, disappeared. I expected him to hop off the bus with his usual smile and...
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Emily Johnson
- Jan 1, 2022
- 3 min
FIVE THINGS I LEARNED AS A PANDAS MOM IN 2021
Last year I debated whether I had the energy to sit down and write a New Year’s Eve post. Exhausted and bruised I recall sitting in my...
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Emily Johnson
- Apr 17, 2021
- 3 min
HOW SAYING YES TO THIS CHANGED MY LIFE
Have you ever been asked to try something completely new and out of your comfort zone? If the answer is yes, well then, you can imagine...
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Emily Johnson
- Mar 2, 2021
- 3 min
THREE REASONS HOW SPECIAL NEEDS PARENTING IS LIKE AN IRONMAN TRIATHLON
This is a tribute to a unique class of high performance endurance athletes that I’ve come to know as parents of children with special...
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Emily Johnson
- Feb 24, 2021
- 3 min
WHAT THIS MIGHT COST YOU: A MERE MENTION
One of the most valuable lessons I learned as a nurse was how the power of language can influence outcomes. I didn’t learn this in...
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Emily Johnson
- Feb 21, 2021
- 2 min
HOPE FOR HEALING
On Saturday I trekked deep into the woods winding my way through trails obscured by snow laden branches drooping heavily on one another....
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Emily Johnson
- Jan 31, 2021
- 4 min
PART 4 - WHERE ARE WE NOW?
“I’m willing to be the PANDAS mom for awhile. I’m happy to carry the stick for a few miles because I know others have carried it before...
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Emily Johnson
- Jan 18, 2021
- 6 min
PART 3 - DEAD ENDS WITH TRADITIONAL TREATMENT
“The relief that washed over me in that moment was incredible. Finally, after months of speaking with so many providers, after countless...
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Emily Johnson
- Jan 12, 2021
- 5 min
PART 2 - JOURNEY TO DIAGNOSIS (NOT ALL ROADS LEAD TO BOSTON)
Part 1 - “I felt relieved to have found an answer. But my relief was short lived as our pediatrician was skeptical of the diagnosis and...
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Emily Johnson
- Jan 10, 2021
- 2 min
PART 1 -THE DAY OUR CHILD DISAPPEARED
Part 1 of a series ***Trigger warning for potentially distressing material (childhood illness, violence, suicidal ideations) It was...
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Emily Johnson
- Dec 31, 2020
- 2 min
FIVE THINGS I LEARNED AS A PANDAS MOM IN 2020
I debated whether I had it in me to sit down and write the obligatory New Year’s Eve blog post. I’m tired, I’m physically bruised on my...
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Emily Johnson
- Nov 30, 2020
- 2 min
HEALTH FOR CHRISTMAS?
Have you ever had a cut that you thought had scabbed over and healed? Or maybe you’ve had a cold or just felt really crappy and then one...
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Emily Johnson
- Nov 2, 2020
- 3 min
SOMETIMES I WISH IT WAS JUST CANCER
You know the feeling when you’re sitting behind a car at a green light - their turn signal on - fully anticipating they will promptly...
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Emily Johnson
- May 9, 2020
- 3 min
MOTHERHOOD MAYHEM & THE MENTAL HOSPITAL
I see you mom. I see your tired eyes, your strong shoulders and your gentle hands. I see the endless ribbons of love ...
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Emily Johnson
- Apr 3, 2020
- 2 min
THE MOST IMPORTANT RSVP
Pumping on a man’s chest as he hung out of the metal wreckage of a red Mercedes in the median of Route 3 North to Boston; pulling the...
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